Archived Newsletters and Communications

ARPKD/CHF Alliance Newsletters and communications are stored in PDFs.   You must have Acrobat Reader to view these documents.  Most of these documents are BIG, so give them a few minutes to download.   
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NIH Research Announcement

Winter 2007 Newsletter

Spring 2004 Newsletter-pages: 1-10

Spring 2004 Newsletter-pages 11-20

Spring 2003 Newsletter

Spring 2002 Newsletter

The Best Newsletter articles from 1996 to 2000
This 75 page document is a combination of newsletters made available to families and professionals from 1996 to 2000.  Outdated and irrelevant articles have been deleted.  In a subtle way they provide a brief history of ARPKD/CHF family involvement. 

Thank you to Dr. Bernard Kaplan and Kevin E. C. Meyers, M.D., at The Children's Hospital of Philadelphia, Philadelphia, P.A. for providing the ARPKD/CHF Alliance medical review of the newsletters.

A very special thank you to Donna Robbins, Assistant Editor, an ARPKD/CHF mother, who worked tirelessly and spent countless hours typing and formatting each issue, to provide families this information.  These newsletters provided the first real educational information, resources and support to ARPKD/CHF families ever, and would not have been possible without her help.