Affiliations, Partnerships, Collaborations:

• The Children’s Hospital of Philadelphia, PA

• The University of Pennsylvania, PA

• Mayo Clinic, MN

• National Institutes of Health (NHGRI, NIDDK, ORD), Washington, DC

• American Association for the Study of Liver Disease, Alexandria, VA

• The Genetic Alliance, Washington, DC

• National Organization of Rare Diseases, Danbury, CT

• American Liver Foundation, NY, NY

• American Gastroenterological Association

• National Disease Research Exchange, Philadelphia, PA

• Children’s Liver Association for Support Services, Valencia, California

• The Jackson Laboratory, Bar Harbor, Maine

• Coalition for Genetic Fairness, Washington, DCz

• Alliance for Taxpayer Access (scientific and medical publications)

• Liam's Light, Toronto, Canada

• Liver Families, Laguna, CA

• PKD Charity, UK

• Nico Challenge, California

• Ezra’s Events, Minnesota

• One Square Mile Community Music Project/Howard Parker, NJ

• And a host of other lay advocacy organizations

We are grateful to these organizations for helping improve the lives of those affected by ARPKD/CHF.