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The following articles, Power Points, and presentations were selected to help manage this disease; this will be continuously added to.
Polycystic Kidney Disease, Autosomal Recessive, Gene Reviews
Pediatric Polycystic Kidney Disease, Medscape, 2013
New approaches to the autosomal recessive polycystic kidney disease patient with dual kidney–liver complications, Pediatric Transplant, June, 2013
NIH Natural History Study Research Papers, resulting from our Natural History study.
Congenital Hepatic Fibrosis, U.S. National Library of Medicine, 2013
Congenital Hepatic Fibrosis Overview, GeneReviews, 2008
Congenital Hepatic Fibrosis, Medscape, 2013
Liver Disease in ARPKD by Benjamin L. Shneider
Experience of a single center with congenital hepatic fibrosis: A review of the literature, World Journal of Gastroenterology. 2010.
Successful long-term outcome of pediatric liver–kidney_Spain review 2017
Health-related quality of life after combined liver and kidney transplantation in children
Liver Transplant Patient Handbook
Specific for UCSF, but holds important information for all liver transplant patients.
Liver and Pancreas Transplantation Information from UCLA
Specific for UCLA, but holds information for all liver and pancreas transplant patients.
