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The following articles, Power Points, and presentations were selected to help manage this disease; this will be continuously added to.

Polycystic Kidney Disease, Autosomal Recessive, Gene Reviews

Pediatric Polycystic Kidney Disease, Medscape, 2013

New approaches to the autosomal recessive polycystic kidney disease patient with dual kidney–liver complications, Pediatric Transplant, June, 2013

NIH Natural History Study Research Papers, resulting from our Natural History study.

Congenital Hepatic Fibrosis, U.S. National Library of Medicine, 2013

Congenital Hepatic Fibrosis Overview, GeneReviews, 2008

Congenital Hepatic Fibrosis, Medscape, 2013

Diagnosis and Management of Hepatobiliary Complications in Autosomal Recessive Polycystic Kidney Disease

Liver Disease in ARPKD by Benjamin L. Shneider

Experience of a single center with congenital hepatic fibrosis: A review of the literatureWorld Journal of Gastroenterology. 2010.

Successful long-term outcome of pediatric liver–kidney_Spain review 2017

Health-­related quality of life after combined liver and kidney transplantation in children

Liver Transplant Patient Handbook
Specific for UCSF, but holds important information for all liver transplant patients.

Liver and Pancreas Transplantation Information from UCLA
Specific for UCLA, but holds information for all liver and pancreas transplant patients.

Survival of childhood polycystic kidney disease following renal transplantation, the impact of advanced hepatobiliary disease

Check your GFR or kidney function

Finding the Best Mattress under 1000 for Your Best Night’s Sleep
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