Archived Newsletters and Announcements

NIH Research Announcement

Winter 2007 Newsletter

Spring 2004 Newsletter-pages: 1-10

Spring 2004 Newsletter-pages 11-20

Spring 2003 Newsletter

Spring 2002 Newsletter

The Best Newsletter articles from 1996 to 2000These newsletters were made available to families and professionals from 1996 to 2000; this is a 75 page document, so give it a bit of time to download. Outdated and irrelevant articles have been deleted.

A special thank you to Dr. Bernard Kaplan and Kevin E. C. Meyers, M.D., at The Children’s Hospital of Philadelphia, Philadelphia, P.A. for providing medical review.

A very special thank you to Donna Robbins, Assistant Editor and ARPKD/CHF mother who worked tirelessly and spent countless hours typing and formatting each issue to provide families this information, and Colleen Zak, editor and ARPKD/CHF mother who also spent countless hours writing and attending to details.  These newsletters provided the very first real information, educational resources, and support to ARPKD/CHF families, and would not have been possible without their dedication.


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