Archived Newsletters and Announcements
The Best Newsletter articles from 1996 to 2000—These newsletters were made available to families and professionals from 1996 to 2000; this is a 75 page document, so give it a bit of time to download. Outdated and irrelevant articles have been deleted.
A special thank you to Dr. Bernard Kaplan and Kevin E. C. Meyers, M.D., at The Children’s Hospital of Philadelphia, Philadelphia, P.A. for providing medical review.
A very special thank you to Donna Robbins, Assistant Editor and ARPKD/CHF mother who worked tirelessly and spent countless hours typing and formatting each issue to provide families this information, and Colleen Zak, editor and ARPKD/CHF mother who also spent countless hours writing and attending to details. These newsletters provided the very first real information, educational resources, and support to ARPKD/CHF families, and would not have been possible without their dedication.