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Email or Letter Campaign On Behalf of ARPKD/CHF

Send a letter or email to family and friends asking for support on behalf of ARPKD/CHF.  We encourage you to individualize letters.  The more personal your letter/email is, the more support you will receive.  Consider including an informative Flyer or Brochure

If sending a letter, request support be sent directly to the ARPKD/CHF Alliance, P.O. Box 70, Kirkwood, PA  17536. 

If you have a mailing list and would like for us to mail out letters on your behalf, we would be happy to do so.  Just contact us Your information will never be sold, rented or shared with other organizations.

All donations are tax deductible and always acknowledged with a thank-you letter and receipt. 
See submitting donations.  Or go online, create your own fundraising page, personalize with your story and picture, email to family and friends asking for support, and watch their feedback and progress at Firstgiving...

Letter #1
Dear Friends,

(An introductory paragraph about your personal situation.)

The ARPKD/CHF Alliance strongly believes that an investment in medical research is an investment in the future.   Research will provide important information about Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis.

The ARPKD/CHF Alliance initiated the largest clinical research study to date: “Clinical Investigations into ARPKD/CHF” and recently funded research at the University of Pennsylvania to identify the underlining mechanism of CHF.   The latter was a direct result of generous donations provided by people like yourself; individuals who want to make a difference.  Investment towards research and the future enables the ARPKD/CHF Alliance to generate more research, education, and advocate on behalf of this disease.    There is an urgent need now, and I’m personally asking for your help.  Please consider supporting the ARPKD/CHF Alliance.

“Improving the lives of those affected.”  Help me help those affected.  Look for the Donation Button at www.arpkdchf.org, or send a donation to the address below.

Thanks and love to all,

Your Name

ARPKD/CHF Alliance | P.O. Box 70 | Kirkwood, PA 17536 | Phone: 717-529-5555/Toll Free 1-800-708-8892 | Fax: 1-800-807-9110 |  Email: info@arpkdchf.org | Web: www.arpkdchf.org

Letter #2
Dear Family and Friends,

2-3 paragraphs of your story…
When my child was born…

My child was diagnosed with Autosomal Recessive Polycystic Kidney Disease (ARPKD) and Congenital Hepatic Fibrosis (CHF) at _____ weeks of age. 

ARPKD/CHF is primarily a children’s disorder that causes high infant mortality and chronic and progressive kidney and liver disease.   Securing funds for research, education and advocacy is critical for the patient population who face the daily challenge of living with ARPKD/CHF.   Resources and research generated and provided by the ARPKD/CHF Alliance enable patients and families to live a better life.

The ARPKD/CHF Alliance was created with the purpose of improving the lives of those affected, and is a 501(c)(3), public charity.   All goals focus on patient needs.  The ARPKD/CHF Alliance has been a powerful advocate for the patient community, creating research, education, and a voice for this disease. 

The need is urgent to raise funds in order to fund research in 2009.  Please consider making a donation at www.arpkdchf.org.   Look for the Donation Button, or send a donation to the address below.

Thank you!

Your Name

ARPKD/CHF Alliance | P.O. Box 70 | Kirkwood, PA 17536 | Phone: 717-529-5555/Toll Free 1-800-708-8892 | Fax: 1-800-807-9110 |  Email: info@arpkdchf.org | Web: www.arpkdchf.org

Letter #3
Dear Family and Friends,

More than ____ years ago my child was diagnosed with ARPKD/CHF (Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis).  In that time…possibly add 1-2 more paragraphs.

No resource has better served our family than the ARPKD/CHF Alliance, the only organization solely committed to our child’s disorder.  They have an extensive website and changed the landscape for this disease by generating medical interest and research.  Their work is not done and there is much to do.  This is a call to action!

Please help the ARPKD/CHF Alliance by supporting them with a donation, to better serve child’s name community with research, education, and advocacy.   Please help us make a difference! 

We appreciate all your support through these years.  Please share this information with others and encourage them to support the nonprofit charity we hold close to our heart-- the ARPKD/CHF Alliance at www.arpkdchf.orgLook for the Donation Button, or send a donation to the address below.

Best wishes,

Your Name

ARPKD/CHF Alliance | P.O. Box 70 | Kirkwood, PA 17536 | Phone: 717-529-5555/Toll Free 1-800-708-8892 | Fax: 1-800-807-9110 |  Email: info@arpkdchf.org | Web: www.arpkdchf.org

   

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