Governing Board

It is a privilege to be a governing board member with the ability to sit at the table and make decisions on behalf of those affected.  Governing board members are committed and passionate about our cause, improving the lives of those affected with a mission to educate, advocate, support, and advance research specifically for Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis. 

Colleen Zak, President
Colleen is the founder of the ARPKD/CHF Alliance and an avid board member since 2001.  She has advocated on behalf of this disease for more then 20 years and feels passionately that more can be done, including evidence based medicine, and eventually care centers specific for this disease that include the adult population. She also works as Nurse Practitioner.  Her greatest pride are her three children.

Rosie Bernardo, Treasurer
Rosie is the mother of a teenager with ARPKD/CHF and an ARPKD/CHF Alliance Board Member since 2004.   She enjoys working as a Newborn Photographer and her past careers include staffing eight Nordstrom stores and a life on the road as a Professional Golf Caddie in European, Australia, Asian, and a Nike Tour.  Upon returning to the United States she went home to northern California and managed her family’s Italian Restaurant for 13 years.

Jennifer Hill, Secretary
Jennifer lives in Iowa with her husband and two children. Her son Carter (now three years old) was diagnosed with isolated CHF in 2015. At the time of his diagnosis, a choledochal cyst was also found. The cyst, along with his bile duct and gall bladder, were surgically removed using a roux-en-y technique. Since Carter’s surgery, Jennifer’s focus has been on creating the best possible life for him despite the limitations of CHF. Jennifer works as a registered nurse in intensive care and is currently advancing her education at Walden University. Her desire for more knowledge is strongly motivated by her son’s condition; her intention is to become a capable advocate for CHF research and help advance the best possible treatments in the future.

 

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