Living with ARPKD/CHF


Normalizing life experiences…. We do what we can to keep our children healthy as possible. Usually our kids don’t see themselves as sick and they don’t want to be treated as such. They want to be just like other kids, they don’t want to be singled out, they don’t want to feel or be treated differently from their peers. Our job as caregivers is to normalize their life as much as possible, try not to make limitations greater than they need to be.


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