- ARPKD Listserv
For anyone whose lives have been affected by ARPKD/CHF.
- ARPKD-CHF Adult Listserv
For any adult living with ARPKD, CHF, or Caroli’s Disease.
- ARPKD LOSS Listserv
Support for people who’ve lost children to ARPKD.
- ADPKD Support
For anyone with ADPKD.
- ADPKD Children Listserv
For anyone whose lives have been affected by ADPKD.
- Kidney-Corner Group
Information and discussion about pediatric kidney diseases.