What is it?
It is youth leadership.
ARPKD/CHF Youth Ambassadors will advise and give input as part of an
exclusive advisory board. What started off solely as addressing
pediatric to adult care issues grew into something bigger.
It is an
opportunity to be involved, to make a difference. By
keeping a finger on the pulse of what ARPKD/CHF youth are thinking,
we utilize kid's senses'. "Improving the lives of those
affected" by putting youth ideas into action and service across the
United States and around the world.
Who may participate?
14 to 21 year olds
What are the benefits?
be heard, inspire, and motivate others.
Create an impact while
Earn Community Service
hours that high schools and colleges appreciate.
How to get started?
Answer several questions
and send them back to us. We want your feedback.
How would you describe
If there was one thing
you could change about this disease, what would that be?
And most importantly,
how does this disease define you?
Email replies to
firstname.lastname@example.org, include your name, state you live in, and
phone number. We will contact you, please know you will need
parental permission to participate if under 18 years of age.