Patient Driven Research

The ARPKD/CHF Alliance generated interest for and partners with the largest study to date: "Clinical Investigations into Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis."

Funded by The National Human Genome Research Institute at the NIH (National Institutes of Health), this study focuses on manifestations specific to ARPKD/CHF. 

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2008 ARPKD/CHF Research Grant Award

>Press Release

The ARPKD/CHF Alliance awarded Dr. Rebecca Wells, M.D., Assistant Professor of Medicine (Gastroenterology) and Pathology and Laboratory Medicine at the University of Pennsylvania, a grant award to study the fundamental mechanism of liver fibrosis.  Such research is critical to therapies.

Liver fibrosis and its complications are increasingly important as individuals with ARPKD/CHF grow older and survive beyond the neonatal period.  >Read More
 

ARPKD/CHF Alliance Grant Program

Guided by peer review and National Institutes of Health gold standard criteria, research specific to Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis.  Contact us for more information.