Ways to Help


Disease specific research is important, and just because a condition is rare should not hinder a patient’s outcome.

Every parent of an ARPKD/CHF child hopes for a better future…and why shouldn’t we?  We have great hopes and aspirations for all children and adults affected.

The ARPKD/CHF Alliance continuously strives to push for better understanding and continuously improve patient outcomes, because that is what we do; our purpose is to improve the lives of those affected, from prenatal diagnosis to post-transplant, with research, education, advocacy, and support.  There is no limit to what we can do as a patient advocacy organization!  See what we have accomplished, including milestones, and where we are going.

Please consider supporting these Calls to Action:

  1. Walk/Run/Cycle, or choose another option! Visit FirstGiving which provides templates for easy online events. Create your own personalized page with a theme/title, your story, and a photo, it takes minutes. This has team capabilities and includes “Faces of ARPKD/CHF” video. Email and invite others to participate, family, friends, and colleagues–ask for their support, and watch comments and progress. Link to facebook and other social networks.
  2. Organize a Golf Tournament.  Contact us at info@arpkdchf.org and we will send you the how-to for this.
  3. Ask for company support, sponsorship, and a matching gift. Matching gifts are tremendously important in helping us reach our fundraising goal.
  4. Shop online online to support us!  It is easy!
  5. Use AmazonSmile and support us each time you place an order!
  6. Donate Now!

Contact us with any questions at info@arpkdchf.org or call 1-717-529-5555.

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