A Push for Change to Improve Organ Allocation for Liver Transplant in Congenital Hepatic Fibrosis
The ARPKD/CHF Alliance Suggests Policy Change to United Network for Organ Sharing (UNOS) There are times when Congenital Hepatic Fibrosis patients suffering from recurrent cholangitis may need a life-saving liver transplant. United Network for Organ Sharing (UNOS) oversees organ procurement and determines the criteria and scoring systems which place patients on organ waiting lists; they [&hellip
