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ARPKD/CHF Alliance — improving the lives of those affected

Memorial Ideas for Special Occasions

Ways families have honored the children they love. There is no right way and no timeline — only what feels right for you.

Birthdays & Angel-versaries

  • Release biodegradable balloons or plant a tree in their name.
  • Light a candle at the same time each year, sharing the moment with family near and far.
  • Donate to a cause your child loved or that supports ARPKD/CHF research.

Holidays

  • Hang a personalized ornament or stocking with their name.
  • Set an extra place at the family table to acknowledge their presence.
  • Volunteer together at a local children's hospital or charity.

Everyday Remembrance

  • Create a memory box with photos, hand-written notes, and small keepsakes.
  • Wear a piece of jewelry inscribed with their name or initials.
  • Write letters to your child on special days — even years later.