October 3, 2020 Virtual Conference

We held an ARPKD/CHF Virtual Conference October 3, 2020. Presentations below addressed Autosomal Recessive Polycystic Kidney Disease, A Research Update, Liver Transplant, Spleen Guards, and a NIH Research Update on the Natural History Study.   

Meral Gunay-Aygun, M.D.,
Professor of Pediatrics and Genetic Medicine,
Director, Metabolic Genetics Clinic at Johns Hopkins University School of Medicine, and as Primary Investigator for the "ARPKD/CHF Natural History Study" at the National Institutes of Health on "Prospective Evaluation of Kidney and Liver disease in Autosomal Recessive Polycystic Kidney Disease-Congenital Hepatic Fibrosis."

Erum Hartung, M.D.,
Nephrologist, from the Combined Kidney/Liver Program at the Children's Hospital of Philadelphia, on the "Kidney, Pathology, Clinical Manifestations, and Long Term Outcome."

Dr. Jessica Wen, M.D.,
Hepatologist, from the Combined Kidney/Liver Program at the Children's Hospital of Philadelphia, Combined Kidney/Liver Program, on "Liver Transplant in ARPKD/CHF."

Christopher Nelson, Certified Prosthetist Orthotist,
Clinical Director at Boston Orthotics & Prosthetics on "The Making of a Spleen Guard to Normalize Life, includes Aspects of Clinical Assessment, Measurement, and Fabrication.