2020 Conference

The ARPKD/CHF conference was originally scheduled to be held at The Children's Hospital of Philadelphia (CHOP), but due to COVID-19 it was held virtually.

We held an ARPKD/CHF Virtual Conference October 3, 2020. Presentations below addressed Autosomal Recessive Polycystic Kidney Disease, a Research Update, Liver Transplant, Spleen Guards, and a NIH Research Update on the Natural History Study.

Meral Gunay-Aygun, M.D.,
Professor of Pediatrics and Genetic Medicine,
Director, Metabolic Genetics Clinic at Johns Hopkins University School of Medicine, and Primary Investigator for the "ARPKD/CHF Natural History Study" at the National Institutes of Health.

Prospective Evaluation of Kidney and Liver Disease in Autosomal Recessive Polycystic Kidney Disease–Congenital Hepatic Fibrosis
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Erum Hartung, M.D.,
Nephrologist, from the Combined Kidney/Liver Program at the Children's Hospital of Philadelphia.

The ARPKD Kidney: Pathology, Clinical Manifestations, and Long Term Outcome
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Dr. Jessica Wen, M.D.,
Hepatologist, from the Combined Kidney/Liver Program at the Children's Hospital of Philadelphia.

Liver Transplant in ARPKD/CHF
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Christopher Nelson, Certified Prosthetist Orthotist,
Clinical Director at Boston Orthotics & Prosthetics.

The Making of a Spleen Guard to Normalize Life
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