ARPKD/CHF Youth Ambassador Project

For Community Service Projects/Hours

Q. What is a Youth Ambassador?

A.  It is youth leadership. ARPKD/CHF Youth Ambassadors will advise and give input as part of an exclusive advisory board.  What started off solely as addressing pediatric to adult care issues grew into something bigger.

By keeping a finger on the pulse of what ARPKD/CHF youth are thinking and getting their feedback, we are utilizing kid’s senses’.  It is an opportunity for youth to be involved, to make a difference.   “Improving the lives of those affected” by putting youth ideas into action and service across the United States and around the world.

Q.  Who may participate?

A.  16 to 24 year olds

Q.  What are the benefits?

A.  Three things.

  • Exciting opportunities to be heard, inspire, and motivate others.
  • Create an impact while having fun!
  • Earn Community Service hours!

Q.  How to get started?

A.  Answer several questions.  We want feedback.

  1. How would you describe this disease?
  2. If there was one thing you could change about having this disease, what would that be?
  3. Most importantly, how does this disease define you?

Email replies to info@arpkdchf.org, include your name, state you live in, and phone number.  We will contact you, please know you will need parental permission to participate if under 18 years of age.

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One Comment On “ARPKD/CHF Youth Ambassador Project”

  1. My name is Nico Bellucci and I will be 18 on March 15th of this year. I live in Westerly, Rhode Island and I would like to become a youth ambassador for ARPKD/CHF. My cell phone number is 805-341-5154.

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