7-18 years old are invitied!
Parentally monitered by mother
Deanna Hall, who welcomes blog feedback or other ways
to support and connect our
For anyone whose lives have been affected by ARPKD/CHF.
For any adult living with ARPKD, CHF, or Caroli's Disease.
Support for people who've lost children to ARPKD.
For anyone with ADPKD.
ADPKD Children Listserv
For anyone whose lives have been affected by ADPKD.
Information and discussion about pediatric kidney diseases.
Government National Kidney Foundation
National Institutes of Health (NIH)
National Institute of Diabetes and Digestive and Kidney Diseases
Division of Kidney, Urologic, and Hematologic Diseases (DKUHD)
Top links for studies on ARPKD and CHF:
National Institute of Health Study
American Journal of Kidney Disease
U.S. National Library of Medicine
American Society of Nephrology (ASN)
Kidney and Urology Foundation of America, Inc (KUFA)
American Association of Kidney
(Great resource for kidney patients)
American Liver Foundation
American Association for the Study of Liver
Asian/Pacific Liver Association
Childrens Liver Support Groups
European Society for
Pediatric Nephrology (ESPN)
International Pediatric Hypertension Association (IPHA)
International Pediatric Nephrology Association (IPNA)
Academic Pediatric Society and Society for Pediatric Research
Understanding Genetics: A Guide for Patients and Professionals
Download the entire
manual (pdf format, 1 MB) or by
United Network for Organ Sharing (UNOS)
The Transplant Patient Partnering Program
National Foundation for Transplants